In 1972, Charles Koenig, a 44-year-old advertising executive, showed the signs of early-onset dementia. Until he died four years later, Koenig was cared for at home by his wife, Joanne Koenig Coste.
Since then, Koenig Coste, who has a master's degree in counseling and psychology, has devoted herself to better understanding the behavior of Alzheimer's and other dementia patients and improving their care.
Dementia is not an inevitable part of aging. More than half of people over age 100 do not have it. Unlike the occasional memory lapses that are a normal part of aging, dementia affects not only memory, but also thinking, judgment and the ability to learn. With dementia, mental functioning typically deteriorates over a period of tv,ro to 10 years.
Koenig Coste's principles help make life easier for caregivers, as well as people who have any advanced form of dementia.
Her advice for five challenges…
A refusal to bathe sets in early during some types of dementia because people who have dementia feel a loss of control and no longer have the ability to "recognize" watel To ouercome that fear…
- Choose a time at which your loved one is accustomed to bathing—not when it is most convenient for you.
- Remove or cover up highly reflective surfaces, such as mirrors, which can lead a perceptually impaired person to think that another person is in the room.
- Dye bathwater blue. This can help alleviate panic caused by a lack of depth perception resulting from the destruction of the brain cells that are responsible for interpreting sensory material.
Do not use food coloring, which will stain your tub—and the person bathing. Bathwater salts that add scent and color to the water work well. These products can be purchased in drugstores.
- Always approach your loved one from the front to avoid startling him,/her. Wash starting at the feet and working up, using a handheld shower head.
Sponge baths also are a good idea for people who are afraid of bathwater. Showers tend to be more frightening.
- Install adhesive "no-slip" strips on the bottom of tlre bathtub and grab bars to help prevent falls.
If bathing is a perpetual battleground, reevaluate your own notions of cleanliness. V4rat is best for your loved one?
People who have dementia often lose bladder and bowel control. To help overcome related problems…
- Hang a picture of a toilet (found in a newspaper ad or plumbing-supply catalog) on the bathroom door to remind the patient where the door leads.
- Paint the wall behind the toilet a bright, contrasting color, such as red or blue, to help the patient find and see the toilet. Many people who have dementia also have glaucoma or other vision problems.
- Make sure that the patient's clothes are easy to put on and take off. Whenever possible, choose Velcro or elastic instead of buttons or zippers.
Catalogs that carry this type of clothing include Buck & Buck, 800-458-0600, www.buckandbuck.com...and Silvert's, 800-387-7088, www.silverts.com.
- To reduce nighttime accidents, keep a light on in the bathroom and place a path of glow-in-the-dark tape from the patient's bed straight to the toilet.
Many people who have dementia become agitated in the late afternoon. The diminishing light decreases their ability to see, and they wonder what they're supposed to be doing. Their powerful long-term memories tell them that they should be heading home from work, getting ready for the kids to come home from school or cooking supper. But difficulty with short-term memory leaves them feeling confused, causing the agitation.
To counteract the effects of sundowning…
- Install a dimmer and replace regular bulbs with full-spectrum bulbs, such as Vita-Lite, that imitate the spectrum of natural sunlight (available at hardware stores). Turn the lights up high when the sun starts to set.
- Listen to music or play a game. Choose your loved one's favorite music. Restful, classical or new age music works better than more stimulating music, such as Big Band tunes.
Some people who have dementia enjoy sorting playing cards by suit, but you can customize the activity to their interests and abilities.
A low-key activity helps preserve a patient's dignity and has a calming effect. Feather dusters can keep a person busy—there's a house full of furniture to dust.
My late husband loved to garden. Although he lost the ability to choose and plant flowers, he still could dig for quite some time. He dug hole after hole and destroyed the yard, but I decided that it was more important for him to feel as if he had "gardened" than to have an attractive yard.
The relentless questions asked by people who have dementia often reflect their fears and vulnerabilities. "What time is it?" really means "\7hat am I supposed to be doing now?" It helps if you have an answer such as, "It's time to have a cup of coffee!"
Mishaps During Outings
Do not tell the patient about outings in advance, and always have a contingency plan. You may not be able to take the person, or you may have to interrupt the trip to take your loved one home. Don't buy nonrefundable tickets if you can avoid it.
Coping with Memory Loss
Baby Boomers often live with the fear that their elderly parents will have trouble with daily living because of age-related memory loss.
The Wisconsin Department of Health and Social Services offers some solutions…
- Avoid a fire in the kitchen by installing adaptive stove controls, which automatically turn off an electric stove after a certain period of time or when there is an excessive amount of heat. Unfortunately, they are not available for gas stoves.
- A simple solution for remembering to take medications is to set up a weekly supply of the pills or capsules in a labeled, clear plastic case, which is widely available at drugstores. A more sophisticated solution is to use an automatic pill dispenser that provides medications at specific times. Some dispensers include an alarm, a visual alert system and even a battery backup in case of power outage.
- When it comes to remembering important phone numbers, attach pictures of familiar people next to their phone numbers on a sheet of paper. Or use a phone that is pre-programmed with frequently dialed numbers.